The
study was conducted and funded from mid-November to mid-December 2012 by
PatientView, an independent global research organization with close ties to
patient and health groups from 56 different countries. The study results
express the views of 40 patient groups (600 respondents) regarding 29
individual pharmaceutical companies and the pharmaceutical industry as a whole.
Participating
patient groups were required to know enough about the pharmaceutical companies
and industry to assess them meaningfully. The 40 patient groups represent the
full spectrum of brain diseases, including neurological diseases, mental
disorders and chronic diseases.
The participating patient groups were asked to assess pharmaceutical companies' abilities on six parameters:
The participating patient groups were asked to assess pharmaceutical companies' abilities on six parameters:
- Best at having a patient-centred strategy
- Best at providing high-quality information to patients
- Best at having a good record on patient safety
- Best at providing high-quality products
- Best at being transparent with external stakeholders
- Best at acting with integrity
The six parameters were
determined in consultation with patient groups and the pharmaceutical industry.
Overall, the reputation of the
pharmaceutical industry declined in 2012, the study finds. Only 34% of the 600
patient groups told the latest survey that multinational drugmakers had an
"excellent" or "good" reputation, compared with 42% for
2011. And 40% of the groups said that the sector's reputation had declined last
year, with 50% judging the industry's pricing policies to be "poor."
Other indicators used by the
survey also showed sharp falls in the industry's reputation between 2011 and
2012; for example, on companies' management of adverse news about a product the
drop was 29%, while for having ethical marketing practices it was 23% and for
having a good relationship with the media the decline was 19%.
Among the reasons given by the
patient groups for the fall in the industry's reputation last year was its
perceived continuing failure to help patients in cash-strapped southern
European countries such as Greece, Portugal, Romania and Spain to gain access
to medicines.
The groups also criticise
pharma for: - a perceived preoccupation with drugs that offer only short-term
health benefits; - making insufficient effort to discover new chemical entities
(NCOs) suitable for neglected groups of patients; - inappropriate marketing of
drugs, including for off-label indications; - a perceived lack of transparency,
especially in reporting disappointing results of clinical trials; and - for
pricing their products at levels which are, in some cases, still unaffordable
to many patients or their payers, culminating in a general impression that
"profit comes before making people well."
Many of the 600 patients referred
to negative press during the year to explain why they had downgraded their
opinion of some companies, particularly on issues of transparency, patient
safety and company integrity. Drugmakers with a high exposure to
"bad" stories in 2012 saw their rankings drop, while other,
less-affected firms benefited as a result.
The top 10 companies for 2012, with their 2011 rankings in brackets, were
judged to be: 1- Lundbeck (3); 2 - Gilead Sciences (10); 3 - Novartis (1); 4 -
Janssen (not featured); 5 - Pfizer (2); 6 - Abbott (8); 7 - Novo Nordisk (11);
8 - Roche (9); 9 - Lilly (18); and 10 - GlaxoSmithKline (4).
The other firms examined were Allergan, Amgen, AstraZeneca, Baxter International, Bayer, Biogen Idec, Boehringer Ingelheim, Bristol-Myers Squibb, Celgene, Menarini, Merck & Co (US), Merck Group (Germany), Sanofi, Servier, Shire, Stada Arzneimittel, Takeda, Teva and UCB.
The other firms examined were Allergan, Amgen, AstraZeneca, Baxter International, Bayer, Biogen Idec, Boehringer Ingelheim, Bristol-Myers Squibb, Celgene, Menarini, Merck & Co (US), Merck Group (Germany), Sanofi, Servier, Shire, Stada Arzneimittel, Takeda, Teva and UCB.